ALS is a cause very close to my heart, my grandfather, Doyle Burdine, passed away from ALS. Since then, my family and I have raised money each year in his honor.
This year, “Attitude is Everything” is the name of our walking group . The reason I chose that name, is because that is what my grandfather had written on his tombstone. Even at the end of his life, when he was could barely move and couldn’t talk, he still managed to maintain a positive attitude.
I remember hearing my dad tell a story about “Pop-Pop,” as the grandkids called him. Towards the end of my grandfather’s life, he had to sign a Hospice form. Barely able to speak, he took the oxygen mask off his face and whispered, “Just because I’m signing this form, doesn’t mean I’m giving up.” And he didn’t. He fought, and he will always be remembered as a fighter.
Often referred to as Lou Gehrig’s Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
Please help me find a cure to this terrible disease. Every dollar helps us get closer to finding a cure! Click here to make a tax-deductible donation!